NuGO Guideline 9

Biobanks

Storage of samples and data

Banking of directly identified (nominal) samples is unacceptable, as it offers little protection for preserving privacy. Personal identifiers should therefore be removed from the sample and data collected as soon as possible. However, it would generally be essential for nutrigenomics research to potentially be able to trace individuals. This can be achieved by coding the biological material and for the code key to be stored separately. Strict rules for storage and the use of the code key must be established.