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• This is a static version of the NuGO Bioethics Guidelines Tool from 2007. Some links may be outdated. Searching is disabled. Please contact the authors for comments or questions

NuGO Guideline 17

Use and exchange of data and samples

Disclosure of personal data

Names, date of birth and addresses must not be transferred to a third party. Further objections of research volunteers have always to be respected.

Under exceptional circumstances which will have to be justified, personal data can be transferred if

• the individual consented to this transfer
• the data protection measures are as strictly followed by the receiver of the samples and data as by the primary holder