NuGO Guideline 16

Use and exchange of data and samples

Access to biobanks

Access to the biobank and use of its samples and data by third parties should be subject to stipulations in form of research contracts and should also be subject to full records for future reference. Access to information or samples for genetic research should be restricted to qualified investigators and subject to institutional oversight. The curator should have the responsibility of control over the access to the collection. Funding bodies of the biobank need to determine the purpose of the collection and if it is available to both commercial ventures and academic researchers. For large genetic databases, establishment of independent oversight bodies is recommended.