NuGO Guideline 11

Biobanks

Benefit sharing

Generally, by international law [see 50, Articles 7], the donation must not be paid for, although travel expenses can be reimbursed (see Guideline 1).

Individual research volunteers ought not to benefit financially. There are two reasons for this:

  1. an ethical background: a human body and its parts are not for sale and
  2. a legal background: to avoid exploitation of an individual.

In addition, the application of financial incentives is against the rule of complete voluntariness because it may put a stronger pressure on socially disadvantaged.

Benefit sharing must take place on the societal level. Financial gain from this kind of research should be re-invested in further research, welfare, or other.

Relevant documents

[ 50 ] Recommendation Rec(2006)4 of the Committee of Ministers to member states on research on biological materials of human origin