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• This is a static version of the NuGO Bioethics Guidelines Tool from 2007. Some links may be outdated. Searching is disabled. Please contact the authors for comments or questions

NuGO Guideline 19

Use and exchange of data and samples

Transfer of a biobank

The transfer of an entire biobank for other reasons than covered by Guideline 17 should be permissible provided that the recipient's standards of research volunteer's protection and quality assurance are equivalent to those of the original institution in charge of the biobank. Implementation of security to ensure confidentiality of genetic information and long term conservation of genetic material should be in place before transfer is done. The transfer of a biobank without research volunteer consent is acceptable only if the samples and data have first been unlinked anonymized and ethical approval was obtained.