NuGO Guideline 19

Use and exchange of data and samples

Transfer of a biobank

The transfer of an entire biobank for other reasons than covered by Guideline 17 should be permissible provided that the recipient's standards of research volunteer's protection and quality assurance are equivalent to those of the original institution in charge of the biobank. Implementation of security to ensure confidentiality of genetic information and long term conservation of genetic material should be in place before transfer is done. The transfer of a biobank without research volunteer consent is acceptable only if the samples and data have first been unlinked anonymized and ethical approval was obtained.