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• This is a static version of the NuGO Bioethics Guidelines Tool from 2007. Some links may be outdated. Searching is disabled. Please contact the authors for comments or questions

References and official documents: World

• Convention for the Protection of Human Rights and Dignity of the Human Being with regard to the Application of Biology and Medicine: Convention on Human Rights and Biomedicine, Oviedo 4.IV.1997
• Additional Protocol to the Convention on Human Rights and Biomedicine, concerning Biomedical Research
• Universal Declaration on the Human Genome and Human Rights
• UNESCO (Working group of the International Bioethics Committee (IBC) on Confidentiality and Genetic Data): Report on Confidentiality and Genetic Data. Paris, 30 June 2000. BIO-503/99/CIB-6/GT-2/3
• World Health Organization: Proposed International Guidelines on Ethical Issues in Medical Genetics and Genetic Services, Geneva, 15-16 December 1997.
• THE WORLD MEDICAL ASSOCIATION DECLARATION ON ETHICAL CONSIDERATIONS REGARDING HEALTH DATABASES
• HUGO ETHICS COMMITTEE: STATEMENT ON HUMAN GENOMIC DATABASES December 2002
• International Declaration on Human Genetic Data
• Operational Guidelines forEthics Committees That Review Biomedical Research
• Statement of the WHO Expert Consultation on New Developments in Human Genetics
• HUGO ETHICS COMMITTEE: Statement on the Principled Conduct of Genetics Research
• HUGO ETHICS COMMITTEE: STATEMENT ON DNA SAMPLING: CONTROL AND ACCESS
• HUGO Ethics Committee: STATEMENT ON BENEFIT-SHARING
• WORLD MEDICAL ASSOCIATION DECLARATION OF HELSINKI - Ethical Principles for Medical Research Involving Human Subjects
• The Nuremberg Code (1949) - International Principles for Human Experimentation
• THE BARCELONA DECLARATION POLICY PROPOSALS to the European Commission November 1998 by Partners in the BIOMED-II Project Basic Ethical Principles in Bioethics and Biolaw
• Draft Report on Collection, Treatment, Storage and Use of Genetic Data
• Obtaining Informed Consent for Genetic Studies - The Multiethnic Study of Atherosclerosis
• Voluntary Participation and Informed Consent to International Genetic Research
• Ashkenazi Jews and Breast Cancer: The Consequences of Linking Ethnic Identity to Genetic Disease
• Convention for the protection of Human Rights and dignity of the human being with regard to the application of biology and medicine: Convention on Human Rights and Biomedicine, Explanatory Report
• Chaoqiang Jiang, G et al: Cohort Profile: The Guangzhou Biobank Cohort Study, a Guangzhou-Hong Kong-Birmingham collaboration
• Knoppers BM et al, The emergence of an ethical duty to disclose genetic research results: international perspectives
• Pharmacogenetics Working Group: Returning Genetic Research Results to Individuals: Points-to-Consider
• Laurie G et al: Genetic databases. Assessing the benefits and the impact on human and patient rights
• CIOMS: International Ethical Guidelines for Biomedical Research Involving Human Subjects
• World Medical Association: Declaration on the Human Genome Project
• CIOMS: International Guidelines for Ethical Review of Epidemiological Studies
• National ethics councils - Their backgrounds, functions and modes of operation compared
• Research Ethics Recommendations for Whole-Genome Research: Consensus Statement
• International Ethical Guidelines for Epidemiological Studies - Prepared by the Council for International Organizations of Medical Sciences (CIOMS) in collaboration with the World Health Organization (WHO)