Bioethics Guidelines, online tool

UPDATE: You can find the NuGO Bioethics Guidelines Tool under http://nugo.dife.de/bot/

Schedule

Planning of the

  • structure of the tool including
  • assignment of the guideline to the correct research situation
  • layout of the web-pages
2.5 month Jan - mid Mar 2006
Programming 1.5 months Mid Mar - April 2006
Launch of the tool
30 April 2006
Evaluation (using the comments and the short poll) 0.5 month Sept 2006
Small revision 1.5 month Sept - Oct 2006

The online version of the NuGO Bioethics Guidelines will be a web-based decision support tool that intends to help designing nutrigenomics studies that match certain ethical criteria.

Set up of the tool (first thoughts)

The tool may start with questions about the planned study, such as design of the study (e.g. observational, intervention), source population for the participants (e.g. general population, children, disabled, clinique patients), or time frames (e.g. under three years, 3 - 10, > 10 years, etc.). Based on the answers, where appropriate, the next questionswill be more and more specific regarding the actual study. This way, the tool finally will lead the user to the specific guideline(s) and appropriate links, examples etc.

Example:

Rahmen1

If the answer is no, the bio banks part will be skipped.

If the answer is yes, the next question will be asked:

Rahmen2

If the answer is yes, the user may be asked for information on the kind of partner institution (commercial, non-commercial, etc.). The purpose here would also be to provide the guidelines and possibly to make respective templates for sample exchange available depending on the kind of institutions that exchange samples. If no templates are available, a check list of things to take care of may also be beneficial.

Finally the appropriate set of guidelines will be displayed for the user. For example: Rahmen3

On the same internet page we might offer a link to an existing example and how security and quality control are guaranteed there:

Rahmen4

Other supplies with links will be possible.

It is also planned to implement kind of a comment function at various stages of the decision support process so that users can give comments on things they missed or could not find etc. The comments can be used to tailor the tool after the test phase.

Rahmen5

When a user is about to leave the tool, the following window may pop up Rahmen6


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